I continue to go back and forth on my stupid migraines. I have been having some other MS relapse symptoms lately but sometimes it is hard to tell what is a flare-up and what is side effects from medicine and so forth. I have talked about that before. I used to follow a number of Facebook groups and MS forums but Multiple Sclerosis presents it’s self so differently from person to person that it often misleads you reading that stuff. It’s like getting lab results and going to google the results when they are out of normal range. Suddenly you are falling down the rabbit hole of OMG I have this or that.
I am really trying to avoid E.R. trips and hospital stays this year. In the past when I feel like this I usually have had to get Steroid infusions. Most of the times in the past I was able to have the infusions done as an outpatient over three days, however the last time I had to stay for 5 days. That time I also had three hours of MRIs done in one setting. Not claustrophobic, well I wasn’t before that extended set of MRI. Since the summer of 2015 I have had many MRIs taken but I can say that anything over 90 minutes starts to be a breaking point.
I see my Neurologist in a couple days. I am debating if I want to go ahead and call her early and see about an IV infusion as an outpatient or if I should contact my MS Neurologist and see if he will order one for me. I don’t want to step on my local Neurologist toes on one-hand but on the other I don’t want to be admitted for 5 days inpatient if I can help it. I hate trying to decide stuff like this. Guess I need to talk it over with Kim and see what she thinks.