Had an appointment with my local Neurologist today. I went prepared for hospital stay but glad I didn’t have to.
Was also afraid that I would have new MRI done, luckily she decided not to since my symptoms are the same I have had each flare-up.
I learnt that the steroid infusion only helps speed the point to feel better. I knew that each flare-up takes a little more from you each time, but I thought the steroids helped with keeping things at bay. Still learn stuff near about MS all the time.
Having issues with coordination, headaches and naseau still but going to have to deal with it and hope I get feeling better, if not my doctor may still have to give me the infusions but since my blood sugar has been good I would hate to mess that up if I don’t have to.
I continue to go back and forth on my stupid migraines. I have been having some other MS relapse symptoms lately but sometimes it is hard to tell what is a flare-up and what is side effects from medicine and so forth. I have talked about that before. I used to follow a number of Facebook groups and MS forums but Multiple Sclerosis presents it’s self so differently from person to person that it often misleads you reading that stuff. It’s like getting lab results and going to google the results when they are out of normal range. Suddenly you are falling down the rabbit hole of OMG I have this or that.
I am really trying to avoid E.R. trips and hospital stays this year. In the past when I feel like this I usually have had to get Steroid infusions. Most of the times in the past I was able to have the infusions done as an outpatient over three days, however the last time I had to stay for 5 days. That time I also had three hours of MRIs done in one setting. Not claustrophobic, well I wasn’t before that extended set of MRI. Since the summer of 2015 I have had many MRIs taken but I can say that anything over 90 minutes starts to be a breaking point.
I see my Neurologist in a couple days. I am debating if I want to go ahead and call her early and see about an IV infusion as an outpatient or if I should contact my MS Neurologist and see if he will order one for me. I don’t want to step on my local Neurologist toes on one-hand but on the other I don’t want to be admitted for 5 days inpatient if I can help it. I hate trying to decide stuff like this. Guess I need to talk it over with Kim and see what she thinks.
Note to self, mucking around with your htaccess files at 4:30am when you are feeling bad and not thinking straight is not a good idea. LOL. Well I guess it was better than where I screwed up my SSL, which lead to me updating my .htaccess file, long story.
The laptop I use has a newer Kaby Lake processor in it. I had a good deal of problems with getting the sound to work, and then the correct video drivers for my discrete Nvidia card. As much as I like Linux Mint I finally gave up after 18.1 Serene just caused too many issues. I switched over to Ubuntu 14.0.4 and got everything working okay, then moved on to 16.04 and everything seems to be good now.
I had completely gotten ride of Windows 10 on the laptop. I have gotten where I loathe windows. I haven’t had any time to practice my coding skills as I have spent most of my time lately when I have felt like it resolving various server issues and MX issues for a website Danielle wanted me set up for her and her friends. Finally got that fixed then she was having problems some of her Apps so I got that resolved. Considering I have the early signs of an MS Flareup the past few days I am afraid I will have to place my troubleshooting and attempts to keep my skills somewhat up to date on hold for a few days.
Still been pretty under the weather. I try to keep doing advanced Python programming tutorials when I feel up to it as well as read from one of my rather extensive programming book collection.
Been studying more on Webscrapping and Regular Expressions lately.
Still fighting my MS issues. Have good days and bad, with the bad outweighing the good. Still average three to four show stopping migraines a week. Fatigue and concentration are the second and third major issues.
Started on a new anti-fatigue medication a couple days ago, but haven’t seen a lot of improvement yet. Was trying to watch an advanced Python programming video and couldn’t focus even though I really wanted to.
Haven’t even felt like playing a game. I have Nioh, Nier: Autonoma, Horizon Zero Dawn and Tom Clancy’s Ghost Recon Wildlands to play, not to mention Mass Effect Andromeda in a couple weeks. Occasionally I might feel up to ten or fifteen minutes of playing before fatigue kicks in.
I hate the fatigue. It’s not a “I’m sleepy” or “worn out” feeling. It’s a don’t have the energy or ability to move even though I really want to. I keep hoping that it will get better. Some times it is. Sometimes I can go from zero to sixty for a bit. Little burst of energy. Sadly those bursts are very far and few in between.
Wow This will be my first post of 2017. I just haven’t thought much about the blog I guess. Pretty much all I’ve been up to is studying Python, the occasional game, and keeping up with CCW firearms.
Currently I have a Ruger LCP2, LC9S Pro, a Smith & Wesson Shield, a Springfield Armory XDM and a XDS. I usually pocket carry the LCP2 and IWB carry the LC9S Pro.
I pretty much love Striker-fired, polymer-framed subcompacts in 9mm for concealed carry. The exception being when I pocket carry the LCP2 which is hammer-fired in .380. Occasionally I will also carry a DAO hammerless revolver in .38spl.
As far as gaming goes I have been playing Overwatch and Nioh. Really love Nioh. It’s hard, frustratingly so at times, but that is the point. Right now Nioh is my favorite PS4 game. Looking forward to Hoizon Zero Dawn later this month and Nier: Autoama next month, not to mention Mass Effect: Andromeda.
As far as my programming, studying up on Web Scrapping via Python right now. Need to study more to feel productive but don’t feel well enough a lot of days to be able to focus.
My MS is about the same as is my chronic migraines. Some days are ok, then others keep me mostly in bed. Just never know what to expect.
My daughter is doing well. She spends most of her free time on Musical.ly to the point of annoying those around her. She enjoys it though so hard to knock her too much ch about it. Of course when I was her age I was busy helping in the family business or learning to program.
Still read as much as I can when I am up to it. TV wise pretty much just watch Supergirl, The Flash, Arrow, DC’s Legends of Tomorrow, Gotham, the 100 and Colony.
Seventeen films I am looking forward to in 2017.
Valerian and the City of a Thousand Planets – Luc Besson was behind The Fifth Element, one of my favorite movies. I think he will do the source material justice. The movie is based on the French comic series Valerian and Laureline. It is a pretty cool series and should provide plenty of ideas for Besson to run with.
Ghost in the Shell – Unfortunately this movie has gotten a bad rap for whitewashing the lead character, swapping out the Japanese character in place of an white actress. That aside, the trailer appears to be faithful to the cult classic
The Mummy – Now billed as the first of the Classic Monster Reboot, The Mummy trailer looks interesting, though honestly it looks like Mission Impossible – The Mummy. I guess one can only see Tom Cruise jumping out of airplanes so many times before these scenes start to blend in together. That said, I am hopeful that the Classic Monster Reboot will get off to a good start.
John Wick: Chapter 2 – I have seen the first film no less than five times now. John Wick was a big sleeper hit for me. I have to say that the character role fits pretty much in line with Keanu’s acting range. I can’t wait for the sequel, I
doubt that the movie will change up the formula much from the last film, but then again I don’t think that is a bad thing.
Star Wars: Episode VIII – After seeing Episode VII and now Rogue One, I think that there is plenty of room to continue expanding the movie franchise. Luckily the last two Star Wars films have managed to undo most of the bad taste that Episodes I, II and III left us with.
The Dark Tower – A Steven King movie that has long been overdue for a movie translation. The casting of Ibris and Matthew as the Gunslinger and Man in Black puts some acting chops into place, er, well Ibris anyway.
War for the Planet of the Apes – If you haven’t seen the first two from the Planet of the Apes reboot, you need to do so
and then be excited for the next in the saga. This time the Apes go up against Woody Harrison.
Wonder Woman – I have wanted a WW film for a while now. I think she is well overdue. After almost getting a TV series the most famous woman in the DC universe is finally going to hit the big screen. While Gal Gadot was not my first, or twenty-first pick to fill the role as Diana, she proved herself in Batman V. Superman by stealing the movie. Set during the Great War the film not only brings Wonder Woman to the screen but also a time period that hasn’t been shown as much.
Kong: Skull Island – Disclaimer, I like my giant monsters to have the name Godzilla. King Kong always has set second fiddle to the king of all monsters. So I am not as hyped by Kong as I am the next Godzilla film, nor Pacific Rim 2. However maybe the film can wash away the bad memories of Mighty Joe and the remake with Jack Black. It has Samuel L. Jackson in it so it can’t be all that bad.
Logan – Hugh Jackman isn’t getting any younger so it is past time for him to finish up his time as The Wolverrine. Sure his cameos have been great, and while I didn’t like Origins: Wolverine, I thought the second stand alone film was okay. Logan appears to be following, at least somewhat, the Old Man Logan story line. I think it will be a fitting end to the character.
Power Rangers – I was a bit too old to get into Power Rangers when they came out. That’s not to say that I haven’t watched a few episodes here and there. When I heard a new Power Rangers film was coming out I actually didn’t care, the trailer changed that however. This Power Rangers movie looks grown-up and appears to be set to appeal to those who grew up watching them much like how G.I. Joe and Transformers appealed to my generation. I doubt I will catch it at the theater but I will be waiting for it to hit Redbox.
Alien: Covenant – Prometheus wasn’t the hit that Ridley Scott had wanted. Sure it was enough to keep fans of the Alien series to stay seated and warrant another go at it. Hopefully this time Ridley Scott will focus on what made Alien and Aliens such hits.
Thor: Ragnarok – Marvel has not one, not two but three films coming out in 2017. Other than a post credit scene with the Sorcerer Supreme, Thor hasn’t been seen since Avengers: Age of Ulton. Will we finally see Odin unmasked as Loki? Will Thanos make a real appearance by the end? Just how much of Planet Hulk is being pulled into the film?
Justice League – Batman V. Superman was a very blah movie. Aside from the scenes with Wonder Woman the film feel pretty flat on it’s face. Will getting the whole gang, sans Green Lantern, finally be the DC movie we have been waiting for or will it be a final notice that DC needs to keep to the small screen? I am keeping my fingers crossed.
Guardians of the Galaxy : Vol. 2 – The first GotG was somewhat of a sleeper hit for Marvel. While it had a good cast it
centered around characters not known by the general public outside comic book fans. The space opera setting was another unknown. However it quickly became a huge hit and everyone wanted a baby Groot to dance on their desk. Will they be able to pull it off a second time? Hopefully, but if nothing else you can bet it will have a killer soundtrack.
Spider-Man: Homecoming – With a somewhat fourth wall breaking name, Spider-Man finally is coming back to Marvel’s control and with it opening up the already existing Marvel Connected Universe. While we got to see a scene with Peter Parker and Tony Stark, and some great moments during the Airport battle of Captain America: Civil War this will be a true homecoming for Spider-Man to work towards coming an Avenger.
Still alive, I think. Have good days and bad ones. Been trying to see if I can focus on brushing up on my Python programming skills when I feel up to it. Outside of that I haven’t been up to much other than re-watching SG1 seasons. I still plan on getting around to scheduling some new song of the days but when I usually feel up to something like that I have other things I need to focus on. If I don’t post again before Christmas, everyone have a good and safe holiday season.